Showing posts with label Academy for Eating Disorders. Show all posts
Showing posts with label Academy for Eating Disorders. Show all posts

Thursday, February 9, 2012

Reasons For Recovery

 I’m collaborating with other writers in a blog series for the month of February. The theme is: Reasons For Recovery. Anne-Sophie Reinhardt at Fighting Anorexia asked several of us advocates to blog about the topic.  I'll be sharing mine on Feb 24th.  In the meantime I'm trying to post all of the other blog posts on Reasons For Recovery.

Matt Wetsel blogs on ...Until Eating Disorders Are No More  https://arenomore.wordpress.com/
Matt's Reasons For Recovery:
Today it’s my turn to talk about reasons for recovery! In case you didn’t know, I’m collaborating with some other writers in a blog series for the entire month of February. The theme is simple enough: reasons to recover. Special shout-out to Anne-Sophie over at Fighting Anorexia for starting the conversation that turned into this little project and for doing most of the organizing.
Beyond the guilt, shame, and self-hatred of any eating disorder is a person who is entirely capable and worthy of giving and receiving love, and fully capable of recovery. The eating disorder tries to convince you otherwise, and will do anything it can to stick around. It poses as your best friend, but in truth, it wants to kill you. In fact, eating disorders result in more deaths than any other mental health condition due to the physical effects they have on the body. Usually when someone enters recovery, there are a myriad of excuses, barriers, and reasons (some real, some exaggerated, some fabricated) which stand in their way. Let’s say someone had to go into a sixty day inpatient treatment program, how do you think that someone would react to such news? Most people do not respond with enthusiasm.
Whatever things came to mind about taking sixty days off of life to go inpatient, they’re probably many of the same things that others would think and say. Maybe it’s just working a support group into the schedule or going to therapy. What I have heard the most from others who are struggling in recovery is “I can’t” followed by a long list of obligations other than recovery. Things like work, school, or relationships are often at the top of the list. None of these reasons, though, address the most important factor:
An eating disorder left untreated has the potential to kill you.
You cannot work a job, go to school, pursue a career, or have friendships or relationships if you are dead. No amount of excuses or barriers changes this fact. When treatment is being considered and I hear someone say, “I can’t!” I want to shout back “Not only can you but you have to!” Setting aside barriers and excuses, recovery comes down to a simple choice: life or death. I don’t know anyone who can honestly say that their eating disorder has ever brought them happiness. If you are reading this and currently suffering from an eating disorder, ask yourself – how does your eating disorder make you feel? Does it bring you legitimate happiness? On the contrary, the responses I’ve gotten from others are that it has brought them nothing but misery and often has ruined their life. My experience was no different. So, when considering the pros and cons of recovery, it’s a matter of choosing between continuing to be miserable and possibly die, or to have a chance at being happy and living.
That was the turning point for me, anyway. The push to do all the work necessary to recover was that anorexia was turning me into the kind of person I didn’t want to be. I was hurting friendships and relationships with excuses and lies. My grades were falling. So much of my time and energy was devoted to losing weight that I didn’t have much time for anything else, and all I had to show for it was a sunken face and an aching pain in the muscles around my heart. The choice to recover was the choice to start living my life again, for me.
While the choice may be easy, however, carrying it out can be much harder. Once again, we encounter, “I can’t!” Early in recovery, it feels impossible to eat normally without giving into whatever disordered eating behavior one has been engaging in. No matter how difficult something may seem, though, it’s neverimpossible. That word is reserved for truly unachievable things. For example, I feel comfortable saying that it’s impossible for me to fly under my own power – I’m not a superhero. By comparison, eating three meals a day without purging them doesn’t seem quite so difficult.
A lot of people with eating disorders struggle with negative self-talk. I think this is one of the most important things one can do: to counter it with a correction and remind oneself of what’s true. The eating disorder makes you say, “I can’t do this! It’s impossible!” but we count that with, “I’m having trouble doing this. It’s very hard for me, but it is not impossible.”
It’s almost like learning to speak a new language – the language of recovery. The eating disorder inserts its own voice into your mind and thoughts, masquerading them as one’s own. It has a very limited vocabulary, consisting of words and phrases to make one feel bad about themselves. You could almost say we get tricked into speaking this language, engaging in negative self-talk and focusing on arbitrary numbers like weight or caloric information instead of how we feel. The language of recovery, though, has no room for self-deprecation, negative self-talk, or the futile effort of measuring self-worth with a scale.
And it’s a language completely worth learning! I consistently find myself applying the things I learned in recovery to other parts of my life. The way I relate to people, the way I respond when others act unskillfully and feelings get hurt, and in my ability to challenge myself to do things while recognizing my own limitations.
It’s never too early to start recovery. Life is too short to spend another day, hour, or minute at war with your body, risking your health and possibly your life.

Sunday, January 22, 2012

Jessica Setnick Blog Interview

This is the second in my blog interview series. This time it is Jessica Setnick, MS, RD/LD, CSSD who was a guest professional on one of our tele-classes in November.


Jessica Setnick Blog Interview
  1. Your website, http://www.understandingnutrition.com/ shows your passion for helping folks with eating disorders.  Where does this passion come from?


It is a combination of wanting to help others and wanting to understand the human condition in some way that would help me understand myself. I learn so much from my patients, and the continuing education that I have pursued has been as applicable to myself as it is to my work. The other aspect is that I feel that I have been given a gift, a gift that I may not have identified on my own, but that the incidents of my life brought to my attention. I am grateful to have found the intersection of what I like to do, that I am good at, that helps people, that I can do for a living. It is my mission and I wouldn’t feel complete if I didn’t act on it. Over time my mission has evolved into helping other professionals to help solve eating disorders, and most recently into helping build a treatment center, Ranch 2300, to do the same.

  1. What is your philosophy on effective eating disorders treatment?


Ah, my philosophy. My philosophy on effective treatment starts with my philosophy on eating disorders themselves. I believe that the nomenclature we use for eating disorders stinks. I think it was developed to facilitate research and description but it does not describe the human experience. So we are not treating individuals with eating disorders as well as we could be because the research is based on artificial distinctions. Anyone who is familiar with the field realizes that two people with “anorexia” might have very different situations – different causes, different skill deficits, different needs – but yet we continue to look for the one “best” treatment. There might be two people whose eating disorders look very different, but they have a lot in common. The treatment must be individualized to what each person needs. But I think that if we did a better job of describing eating disorders, such as “Depression-related eating disorders” and “Anxiety Spectrum Eating Disorders” and “Post-traumatic eating disorders” instead of the way we do now, we could also do a better job of recommending treatments rather than the trial-and-error approach.


The most important factor in treatment that lasts is recovery protection, ie the systems and skills that someone needs in order to thrive outside of a treatment setting. That has been the most fun part of designing Ranch 2300 – thinking of all the skills that someone needs to “make it” in recovery, and figuring out ways to teach those skills in the safe environment of treatment.

  1. What is your opinion on full recovery?

I prefer to use the word “remission,” since it seems to fit the paradigm of eating disorders better than recovery. I feel recovery can begin the very day someone realizes their eating disorder is killing them and they want to change, but that is no guarantee of a change in the parameters we tend to measure. On the other hand, an individual may be weight-restored and seem to be “in recovery” while internally they are not recovered at all.

Remission indicates that while bodies heal faster than minds, both the body and mind have recovered to the point that eating disorders stay in the thought stage only and do not transmit into behaviors that are problematic. In other words, I believe that I am in remission because when I have eating disorder thoughts, I am able to manage them before they lead to behaviors, and on occasion under extreme duress when I have an eating disorder behavior, it is no more severe nor lasting than the average American. It does not lead to guilt or shame, or a repetitive cycle, and I use it as a clue that life is not in balance and a cue to re-evaluate my situation.

My opinion on Remission is that it takes up to 7 years of compliance with treatment from the day an individual with an eating disorder enters treatment to advance to the stage of Remission, where the eating disorder is genuinely and for all practical purposes “in the past.”
  1. How have people used your boot camp to treat their eating disorder?

Well I did not intend it for that purpose, it is a training program for professionals treating eating disorders. But after some of the workshops, professionals who attended would come forward and tell me that after attending the weekend they recognized their own eating disorder, or recognized that it was no longer congruent with their lives, and they asked me to help them find treatment in their area.
  1. What do you tell people who care about someone with an eating disorder to say to encourage their loved one to seek treatment?


I care about you is a good start. I care about you and I would like to help you find treatment is even better. I care about you and I have made an appointment with a counselor to talk about how hard it is to watch someone I love hurt themself is the best way of all. Because then you are not only expressing yourself, expressing how deeply this is important to you, and how you are willing to stick by this person “in sickness and in health,” but you are also role-modeling self-care and reaching out for help, two things that everyone with an eating disorder needs to see more of.

Thursday, July 1, 2010

War on Obesity...not my choice of words

As someone who cares about a person impacted by an eating disorder are you feeling helpless? So many families/friends tell me they feel hopeless, helpless and want to help but don't feel there is anything they can do. In addition to encouraging your loved one to get treatment (if they are over 18 and you can't make them) so that you can enjoy life with them again, you can take action. Here is one way you can help get more attention to eating disorders so that help will be more accessible.

EATING DISORDER COALITION CALL TO ACTION
Posted: 29 Jun 2010 11:14 AM PDT
TIME SENSITIVE Action Alert! Ask Michelle Obama to address eating disorders!

Posted: 29 Jun 2010 07:06 AM PDT
TIME SENSITIVE Action Alert! Ask Michelle Obama to address eating disorders!
The Eating Disorders Coalition (EDC) is working with Congressman Alcee Hastings, who cares about eating disorders and is asking Michelle Obama to expand her Childhood Obesity Initiative so that it also addresses eating disorders. Congressman Hastings has written the below letter to the First Lady and is looking for additional Members of Congress to join him in taking a stand for eating disorders by signing onto this letter.
This is where you come in!
We ask that you call your Representative in the House and ask her/him to sign onto this letter. Deadline for signing on is close of business Thursday, July 1st.
This is important. We have an opportunity to influence Michelle Obama's initiative so that it is more comprehensive and addresses the spectrum of eating disorders as well as obesity.
If you do one thing today - have it be this. Contact your Representative now.
Here's how:
1) Who is my Representative? If you don't know who your representative is
- go to www.house.gov
- put your 9 digit zip code into the box in upper left corner
- This will take you to your Representative
2) Calling your Rep
- Call 202-224-3121 which is the Capitol Switchboard and ask for your Rep's office. They will connect you
3) The MESSAGE
Tell the person answering that you are a constituent of Congressman/woman XX and that you would like him/her to sign onto Alcee Hastings letter that urges Michelle Obama to incorporate eating disorders into her childhood obesity campaign. The deadline for signing onto the letter is July 1st.
The receptionist may transfer you to the health legislative assistant who is in charge of this issue. You then repeat your message. You can get this person's email address and send the letter below.
More message:
Everyday people are dying of eating disorders yet this reality remains unrecognized and hidden. When there is such a focus on weight as is the case in the First Lady's initiative - this invariably results in some people using risky weight loss methods, the increase of weight-related stigma and bullying, and developing eating disorders. Unless Michelle Obama overtly includes a discussion of eating disorders in her efforts there is the unintended possibility that her campaign will do harm. If your boss adds his/her name to this letter it will help influence the First Lady's Initiative so that it is comprehensive and promotes health for all children.
If the office wants to sign on to this letter, they should contact Amye Greene at 5-1313 or amye.greene@mail.house.gov. This is for Members of Congress and their staff ONLY - please do not contact Amye as an advocate. If advocates have questions please contact Jeanine at the EDC at jeaninecogan@starpower.net.
The Sign-On Letter:
DISCUSSION DRAFT
June 28, 2010
The First Lady of the United States
The White House
441 G Street, NW
Washington, DC 20500
Dear First Lady Michelle Obama,
Thank you for championing the health and welfare of our nation’s children through the Let’s Move Campaign. Let’s Move has brought historic attention to the importance of addressing one the most serious public health concerns of today. However, we believe that broadening Let’s Move’s focus to include information about eating disorders would enhance the campaign’s mission to improve the mental and physical health of all children.
We understand that obesity and eating disorders have distinct health impacts, and believe that the prevalence of these disorders indicates the need for comprehensive and well-coordinated interventions that support healthier habits and environments. Like obesity, unhealthy weight loss measures, anorexia nervosa, bulimia nervosa, binge eating and eating disorders not otherwise specified (EDNOS) have increased significantly over the past few decades. In fact, more than 11 million men, women and children suffer from an eating disorder in the United States.
In a speech that publicly introduced the Let’s Move Campaign, you stated that unhealthy diets and habits can negatively influence physical, emotional and educational development and well-being. Eating disorders are no exception. The Centers for Disease Control and Prevention (CDC) found that undernourishment impacts a student’s ability to excel academically, and suicide, anxiety and depression are more common in people with eating disorders. Eating disorders also have the highest mortality rate of all mental illnesses, and can result in long-term health issues including heart and kidney failure, cognitive impairment, muscle atrophy and sudden death.
Like obesity, eating disorders afflict children of different ages, genders, economic backgrounds, and ethnicities. At least 30-40 percent of junior high students have reported dieting, over half of high-school girls have reported dieting, and 25 percent of bulimia and anorexia cases are men. What’s more, student athletes can be especially vulnerable to eating disorders because some adopt unhealthy dietary restrictions and weight loss methods to achieve or maintain a certain weight for competition. Many obese individuals resort to unhealthy weight loss tactics and may develop eating disorders in an attempt to achieve a desired weight or body image.
Strong environmental, cultural, social factors have contributed to the high rates of obesity and eating disorders in the United States. Stigma, blame and misinformation often accompany these conditions. Coordinated efforts among educators, elected officials, parents, community leaders and young people are crucial to executing sustainable solutions to these public health problems. We believe that Let’s Move Campaign’s mission is compatible with messages and interventions that are designed to address eating disorders. Educators could incorporate information about unhealthy dieting when providing information about healthy food choices. Speeches and parental toolkits could include information about risks, signs and support networks for eating disorders. And, the Let’s Move Web site could include a link to the Office of Women’s Health Web site which has comprehensive and evidence based information on eating disorders.
The unprecedented leadership in the battle against obesity through the Let’s Move Campaign shows your commitment to creatively and aggressively improving the health of children, families and communities. We hope that you will take our suggestions into consideration so that the Let’s Move Campaign can take a more holistic approach to addressing the full spectrum of behaviors that are compromising the health of America’s children.
Sincerely,
Alcee L. Hastings
Member of Congress
_________________________
If the office has any questions or wants to sign on to this letter, they should contact Amye Greene at 5-1313 or amye.greene@mail.house.gov.
Thank you for adding your voice to this effort. Every call makes a difference!
From the Hill,
Jeanine Cogan, Ph.D., Policy Director
Eating Disorders Coalition
www.eatingdisorderscoalition.org
202-352-3208

Friday, March 19, 2010

Education about Eating Disorders

Thanks to Sheila Himmel, Co-Author with her daughter Lisa of Hungry: A Mother and Daughter Battle Anorexia for her article on Pediatricians: first responders to possible eating disorders I found it thought provoking and frustration producing. Not due to what Sheila shared but what a doctor shared...this is why I am out there talking with health care providers.

Here is what the doctor had to say in Sheila's article:
Dr. Frederick Lloyd http://tinyurl.com/y9bm3ja told me, "I've never had to hospitalize on that first visit. My usual strategy is to listen to the family and the child's concerns, which is most often weight loss. The child almost always feels there is not a problem and they are in control. Since they are usually medically stable, I suggest the parents step aside and we will see where we are in a couple of weeks. Sure enough they come back with further weight loss, and then I describe what needs to be done to be sure this is not an occult medical condition [such as celiac disease]. I describe how we will follow this, and then, depending on how they do, discuss other resources."

Tell me why the doctor wouldn't talk with the parents further and dig a little deeper instead of wasting valuable time? Why not refer to an eating disorders specialist who could do an evaluation and if there is a problem, get treatment started right away? If this was cancer would the doctor take the child's word for it that he/she feels fine and delay treatment? It is time for more education of the front line health care providers on the seriousness of these illnesses.

AND - that doctor and many others need to know that not all people with eating disorders present with weight loss. Hello.

Here is my comment to Sheila, I am so grateful that she got me thinking about this more. Yes, this one hit a nerve with me. Gives me some more talking points with the health care providers I speak with on this topic.

Thank you Sheila for this article and for the work you are doing in trying to educate the doctors. I felt my blood start to boil when I read what the doctor said about weight loss being the most common thing he sees! Then it hit full boil when I immediately read that he asks the parents to back off.

This is why it is so important that you and I and many others are out there doing the educating that our medical schools haven't done. First of all, anorexia is the least common of all the eating disorders and so if he is watching for weight loss then he is missing many kids with bulimia and binge eating disorder who don't often present with weight loss.

It took at least 2 years to get my daughter's eating disorder diagnosed in part because she wasn't emaciated. Doctors need to know that it can still be serious and that the parents need to be involved.

That parentectomy model is so old - I am not shocked that he is still suggesting this but I am saddened by it.

Thank you Sheila for sharing this.
Becky Henry
Hope Network, Inc.
www.hopenetwork.info

So readers, I'm a bit riled up for a Friday, thanks for reading. Would love to hear your experiences with trying to get an eating disorder diagnosed by a primary care physician.

Friday, March 12, 2010

Support for parents of kids with eating disorders

I blogged about this a couple of weeks ago but it bears repeating as this should be a great event for families to attend to get what they need to support them while they are caregiving their loved one with an eating disorder.

The Mission of Hope Network is to provide access to resources, hope and healing to all families affected by eating disorders through: education, coaching, writing and speaking. Creating informed healthy families leading loved ones to full recovery as they navigate the crisis of an eating disorder with Joy and Peace and Hope.

Saturday, March 20, 2010 at 10:00 am - 5 pm, The Lighthouse International Conference Center, 111 East 59th Street, New York, NY


Please join ROAED and RAMS for a day of education, renewal and friendship. This event is for parents, spouses, boyfriends, girlfriends, and other loved ones of those suffering from an eating disorder. Presentations will include guest speakers, music, art, coping skills and much more.

Visit www.familymentors.org to register.
Registration deadline is February 20, 2010.
Tickets $125 per person, lunch included.

Our goal with this workshop is to bring parents, mothers, fathers, boyfriends, husbands, and other loved ones of those suffering from an eating disorder together to empower you to feel you are not alone. It is to give you the freedom to realize it is okay to take care of yourself, as a person, and that in this way set an example for your child that you can survive this difficult time. We want to be able to educate as well as give a refreshing and new outlook on the recovery process. We envision that a Journey to Hope is the first of many workshops we can offer families.

Monday, February 8, 2010

Messages to our First Lady

As many of you know, there has been a lot of buzz in the eating disorders world about comments the press tells us that the first lady made about her daughters' sizes. Having learned over the past couple of years that what really matters is fitness and health, not size or weight I've had some thoughts about the matter. I'm realizing that fitness and health are what I always have valued and I'd been led to believe that weight and size were directly influencing the former two.

I am very grateful to two of my "parent heros" who share my passion for making eating disorders a thing of the past. Both Laura Collins and Doris Smeltzer have addressed this directly with Michelle Obama and I commend them both for eloquently and elegantly doing so. Both of them handled it with grace, style and respect of the first lady.

I am sharing with you the links to their blogs so you can read for yourself what they had to say. I hope that Mrs. Obama will get a chance to see and hear what they have to share also. For I too believe she is a very smart woman who like many of us has been led to believe that size and weight determine our fitness and health. My wish is that our first lady will study this as so many of us have and make her own choices about this matter. Of course I am hoping she will see the validity of this concept and use her position to share this with our health care providers so that they too can do no harm.

Thank you Laura Collins http://eatingwithyouranorexic.blogspot.com/2010/02/what-eating-disorder-world-wants-mrs.html? and Doris Smeltzer http://www.eatingdisordersblogs.com/parents/2010/02/a-message-to-our-first-lady.html

Thursday, December 24, 2009

Eating Disorders and the Holidays

Families living with an eating disorder can find the holidays extra challenging with all the focus on food. There are so many different stresses and foods that can be frightening for people facing eating disorders.

Last night I got to have a conversation with Peter McClellan on his radio show 401k Latte about eating disorders at the holidays. We talked about the huge spreads of food that can be overwhelming and stress inducing. Take a listen: http://www.kkmslive.com/MP3/PM_12_23_09.mp3

Peter asked some great questions to open up the conversation about how both parents and health care providers can support someone with an eating disorder. A few things we talked about were:

* As family member; put on your oxygen mask first-make a Top Ten list and do 1 each day
* Family members can help by: Learning to let go with love
* Don't make comments about other people's bodies
* Low fat - Low Calorie diets backfire - they don't work
* Language from health care providers is important - telling patients to lose weight not only doesn't help - it hurts.
* Health care providers can ask open ended questions about what a patient's health care goals are can enroll the patient in the process of making healthy choices.
* Health Care providers can attend: movingmountains4health.com to learn more
* The book: Just Tell Her to Stop can be pre-ordered at: www.hopenetwork.info
* Weight-ism is alive and well and needs to be addressed
* People can be health at many different sizes
* Focus on overall health to achieve your health goals
* Insurance and eating disorders coverage - Academy for Eating Disorders works for mental health parity
* Book on family stories of living with eating disorders website will be live in a couple weeks: JustTellHerToStop.com
* I received the Braveheart Award for living life with Passion and Inspiration
* College professors can order the book to add to their curriculum
* Pharmaceutical companies are invited to purchase the books to donate to eating disorders treatment centers.

I welcome your comments on the show. What have you heard from your health care provider that has backfired for you? What comments have you found helpful while recovering from an eating disorder?

I hope you will focus on what you are grateful for this holiday season and have peace.